A little girl left with piercing ‘silver’ eyes and in extreme pain due to a rare condition has had them removed and is now making huge improvements.
Five-year-old Primrose Austin was living in horrendous pain after a build-up of pressure behind her eyes left her with a detached retina, forcing medics to remove the optic tissue from both of her eyes.
Primrose is an orphan, who was adopted by Chris and Eryn, from Buford, Georgia. They were told she was blind because of untreated glaucoma and that she was potentially deaf.
She was taken to see doctors in the US and had more tests where it was found she had a rare condition called 6p25 deletion syndrome and it the cause of her eye problems and her unique brain structure.
The little girl woke up in agony eight months ago and was rushed to hospital by her parents where 11 specialists tried to get to the source of what was causing her such extreme pain. The pain made her cry for 16 hours a day and would refuse to eat or drink. After seeing the MRI, the decision was made to operate.
Now she’s now walking again and is able to communicate through a touch-based form of sign language.
Her mother Eryn said, “It was like living in a constant nightmare, not knowing whether she would be ok.”
“Doctors tried to eliminate her source of pain one by one, we were at the point where they had worked through most of the causes. It was an excruciating experience for us all, she was drenched in sweat, her body was dealing with such intense pain and her nervous system was going nuts,” she added.
“There would be a lot of sacrifices and life changes for Primrose’s benefit, basically disrupting their comfortable lives on the behalf of her.” she further added.
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